First European LAM Conference

LAM Italia is hosting the first European LAM conference in Udine, Italy on the 1st, 2nd and 3rd of October. Udine is 130k north east of Venice, not far from the Slovenian border.

LAM Italia’s President, Iris Bassi, says many of the world’s top researchers and LAM clinicians will be speaking at the conference.

Anyone with an interest in LAM is invited to attend, including clinicians, researchers, and patients. LAM Italia hopes that LAM patient organisations from all over the world will be represented.

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To learn more about LAM Italia, go to www.lam-italia.org and use Google’s translation tool to read the site in English.

Objectives

The objective of the conference is to provide an update on current researches and clinical trials against lymphangio- leiomyomatosis, a rare and fatal disease for which at the moment there is no known cure. This uncommon condition affecting a number of organs requires a multi-disciplinary approach on an international level. At this event, a number of researchers, clinicians and experts on LAM from across the globe will meet to discuss and establish the best strategy to work towards an effective treatment for lymphangioleiomyomatosis.

Audience

Member of the national and international scientific community, in particular clinicians, pneumologists, researchers from Italy, Europe and the rest of the world. In particular, professionals who are involved in rare diseases, cancer and regene- rative medicine. The speakers invited to present at the Conference have all thorough experience in LAM.

Participants

Local Authorities

Bruno Bembi / Centro Regionale delle Malattie Rare Regione Friuli Venezia Giulia
Nora Coppola / Assessorato alla Sanità della Regione Friuli Venezia Giulia
Vladimir Kosic / Assessore alla Sanità della Regione Friuli Venezia Giulia
Domenica Taruscio / Istituto Superiore di Sanità, Roma

Clinicians and Pneumologists

Paolo Casali / Istituto Tumori, Milano, Italy
Sergio Harari / Osp. San Giuseppe, Unità operativa di Pneumologia, Milano, Italy
Simon Johnson / University of Nottingham, UK
Francis Mc Cormack / University Hospital Cincinnati, Ohio Branch Pulmonoray Critical Care e Scientific Director of The Lam Foundation, USA
Joel Moss / Translational Medicine Branch, National Heart, Lung, and Blood Institute National Institutes of Health, Be- thesda, USA
Federico Rea / Università di Padova, Italy
Silvia Stacchiotti / Fondazione IRCCS Milano, Italy

Researchers

Judy Black / University of Sydney, Australia
Franco Bonetti / Università di Verona, Italy
Marco Chilosi / Università di Verona, Italy
Pier Paolo di Fiore / Ifom, Milano, Italy
Caroline Heckman / University of Helsinki, Finland
Elisabeth Henske / Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Boston, USA
Vera Krymskay / University of Pennsylvania Medical Center, USA
Shuger Lucia / University of Chicago, USA
Graziella Pellegrini / Università di Modena, Italy
David Sabatini / Whitehead Institute, Cambridge, Massachusetts, USA
Elisabeth Thiele / Carol and James Herscot Center for Tuberous Sclerosis Complex Cambridge, Massachusetts, USA
Cheryl Walker / University of Texas, MD Anderson Cancer Center, USA
Raymond Yeung / University of Washington, USA

Representatives from LAM Associations

LAM Australia, LAM Austria, FLAM / LAM France, LAM Germany, LAM Italia, LAM New Zeland, LAM Spain, LAM Action / UK, LAM Foundation / USA, The LAM Treatment Alliance

Expected results

Further develop knowledge and understanding of lymphangioleiomyomatosis through the exchange of information within the international scientific community. Define strategies and ways to apply them in the near future in order to find a treatment for this disease.

Location: Udine. Further details on location will be provided
Date: 1st, 2nd and 3rd of October 2010
Overview of costs: Expected costs of approx. e50,000