LINKS
The mission of the LAM Australia is to seek a cure for the rare lung disease, lymphangioleiomyomatosis, referred to as LAM.
LAM Australia is based in Australia and working to strengthen links across the Asia-Pacific region and throughout the world.
LAM Australia aims to facilitate correct diagnosis of LAM by familiarising medical practitioners with the rare condition, to support women who have been diagnosed, and to fund research to accelerate the discovery of a cure for LAM.
Research Institutes
- Woolcock Institute, Sydney, Australia
- Ludwig Institute, Melbourne, Australia
- Australian Lung Foundation, Brisbane, Australia
- Malaghan Institute, Wellington New Zealand
- Australasian Registry Network for Orphan Lung Disease
International LAM Organisations
- LAM Foundation
- LAM Treatment Alliance
- Worldwide LAM Patient Coalition
In January 2007, The LAM Foundation formed the Worldwide LAM Patient Coalition (WLPC) to collaborate with patient organisations in Australia, Austria, Brazil, Canada, China, France, Germany, Italy, Japan, New Zealand, Spain, United Kingdom and United States. - New Zealand LAM Charitable Trust
- LAM Africa
- LAM Austria (Österreichs Selbsthilfegruppe für Lymphangioleiomyomatose)
- LAM Brazil
- LAM Canada
- LAM China
- LAM France
- LAM Germany
- LAM Italia
- A.I.LAM
- LAM Action UK
- LAM Japan
- LAM Romania
- LAM Spain (Asociación Española de Linfangioleiomiomatosis)
- LAM Turkey (LymphAngioleioMyomatosis)
- Breathing Works
NZ based practice specialising in improved breathing techniques, with books and advice for people outside Auckland
Reports, News, Journal Articles, Conferences
- LAM Treatment Alliance report on Oxford Summit January 2008
The Oxford summit was attended by patient representatives from seventeen international LAM organisations as well as researchers and drug company partners. LARA’s Vice President Bronwyn Gray was there. Click the link to read more… - European LAM Conference (PDF)
- Australian Women’s Weekly article by LARA’s first patron, Bettina Arndt
