One person in 20 is affected by a rare disease. Over 6000 different rare diseases affect children and adults worldwide.Most are genetic, chronic and debilitating. They often isolate patients and their families. The sixth Rare Disease Day, 28 February 2013 advocated “Rare Disorders without Borders” – the need for international co-operation with doctors, researchers, policymakers and patients working together.
Hear podcasts of women who are living with LAM in Australia speaking on radio. Shani Elridge conversed with Ann Creber on The Good Life on FM Radio 3MDR 97.1 at http://www.3mdr.com/program/blog/2688/The-Good-Life/The-Good-Life-25th-February-2013. Kate Wingrave spoke from the ABC’s Perth studio with Carol Duncan on ABC Newcastle AM Radio 1233 on 28 February. Janet Neustein & Allan Glanville were interviewed on PM on Rare Disease Day 28 February 2013. Transcript available at: http://www.abc.net.au/pm/content/2013/s3700693.htm?site=sydney Podcast downloadable from ABC archives: http://www.abc.net.au/pm/content/2013/s3700693.htm