Worldwide LAM Awareness Day Friday 01 June 2012

Wednesday 01 June is Worldwide LAM Awareness DayWith an estimated quarter of a million women worldwide living with LAM, this day focused attention on lymphangioleiomyomatosis. LARA’s two week Yogathon centres on Worldwide LAM Awareness Day.

An interview with LARA committee member, Marion Lang, was published in the Wimmera Mail-Times on 01 June. Download the interview here.

Lymphangioleiomyomatosis (LAM) is a rare, progressive and frequently fatal lung disease that strikes women, usually during their childbearing years.  Symptoms may include shortness of breath, coughing, collapsed lung, chest pains and/or fatigue.

Leaders of LAM organisations from The LAM Foundation in the United States and 17 other countries including Australia have declared 01 June an annual international day dedicated to LAM awareness.  Because LAM is such a rare disease, it receives much less media attention than more commonly diagnosed diseases.

The LAM Foundation knows of approximately 1600 cases of LAM worldwide, but it is estimated that there may be as many 250,000 – 300,000 women with LAM who are currently undiagnosed or misdiagnosed.  In Australia we know of 65 women currently living with LAM.

In many states of Australia women with LAM are being interviewed for radio programs which will be aired this Wednesday.
“Aired” is a word that resonates with women who have LAM – they often depend on supplementary oxygen to survive.  LARA is funding to find a cure for LAM.

You can help make a difference to the lives of women with LAM by contributing to the funding of vital research into the disease.